Comments on: Navigenics: The Experience http://chilmarkresearch.com/2009/03/16/navigenics-the-experience/ Providing perspective on key IT trends in the healthcare sector Thu, 09 Feb 2012 23:01:44 +0000 hourly 1 http://wordpress.com/ By: Personal DNA Sequencing Price Dropped by 50%! | angiEmedia http://chilmarkresearch.com/2009/03/16/navigenics-the-experience/#comment-3066 Thu, 18 Jun 2009 09:00:06 +0000 http://chilmarkresearch.com/?p=1384#comment-3066 [...] Navigenics: The Experience [...]

]]> By: Gerry Higgins, Ph.D. http://chilmarkresearch.com/2009/03/16/navigenics-the-experience/#comment-2642 Sat, 18 Apr 2009 15:11:16 +0000 http://chilmarkresearch.com/?p=1384#comment-2642 It is not conclusive, as you suggest, that all genes that convey susceptibility to a given disease have been identified. In fact, the domain is very much in its infancy. However, you can increase the power of the existing genomic information by combining those data with your other personal health data, as was suggested by Barbara Prainsack and Jenny Reardon in their commentary in Nature (see http://www.nature.com/nature/journal/v456/n7218/full/456034a.html).

Thus, I believe it was irresponsible for the ‘pioneers’ consisting of the first 10 members of the Personal Genome Project to post their genomic data along with their own personal health information (see http://www.personalgenomes.org/pgp10.html).

It not only sets a bad precendent, but it could also harm their offspring when new disease genes are identified, placing not only themselves but also their offspring at risk of not obtaining medical insurance and other coverage (look at the actions of the Medical Information Bureau (MIB), that has been collecting personal health information for years. The MIB is an organization established by the insurance industry (as they describe it, “similar to a credit-reporting agency”) that collects data on individuals
from various healthcare insurance claims. The MIB then distributes this information, correct or not, to the health and life insurance companies as requested).

]]> By: Bertalan Meskó http://chilmarkresearch.com/2009/03/16/navigenics-the-experience/#comment-2411 Mon, 16 Mar 2009 18:39:53 +0000 http://chilmarkresearch.com/?p=1384#comment-2411 John,

Excellent review and very valid points. I’ll link to you post in my Twitter community and will include it in the next Gene Genie blog carnival edition, if you don’t mind.

Thank you for the mention!

Berci

]]> By: Sean Nolan http://chilmarkresearch.com/2009/03/16/navigenics-the-experience/#comment-2410 Mon, 16 Mar 2009 17:00:43 +0000 http://chilmarkresearch.com/?p=1384#comment-2410 Hey John … just a quick follow-up. the Navi folks are still finishing their HealthVault upload — but it will be done within the next few weeks.
—S

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